A. Archival Data Collection: Gathered/ collected diaries, articles and surveies needed for the research paper from the Temple University Library.
B. ) Internet Data Collection: Collected informations from different cyberspace sites.
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C. ) Secondary Data Collection: Collected secondary informations on the impact of societal policy on Alzheimer ‘s disease patients and their households from Alzheimer ‘s Association and other organisations that focus on Alzheimer ‘s disease like the Alzheimer ‘s Disease Education & A ; Referral ( ADEAR ) Center.
D. ) Statistical Data Collection: Gathered/collected statistical informations needed for the research from certified association and organisations that focus on Alzheimer ‘s disease. The information gathered was from the twelvemonth 1987- 2007 for truth and preciseness intents.
II. Constitution of Contacts from Various Federal Government Agencies
Built and established web of contacts from several noteworthy province authorities bureaus such as Medicaid, Medicare, and Social Security Disability in order to garner cardinal internal and confidential information such as the followers:
Medical insurance coverage for people 65 old ages and older and people with disablements under the age of 65
The composing of the medical needs/services provided by the abovementioned province authorities wellness bureaus ( e.g. , drug coverage, health care tests, long term attention etc. )
Eligibility standards and appraisal for the receivers of these health care services
Payments & A ; cost coverage
III. Formulation of the Policy Proposal
A. ) Proposal to Ordain Amendments to the Public Health Care Policy: Devised a policy proposal which consists of the undermentioned amendments:
1. That the federal authorities bureaus ( Medicare, Medicaid, and Social Security Disability Insurance ) view the early-onset Alzheimer ‘s disease with the same position as late-onset Alzheimer ‘s disease, puting the case in point for province plans and leting eligibility standards to be based upon diagnosing.
2. That the province authorities bureaus ( Medicare, Medicaid, and Social Security Disability Insurance ) view the early-onset Alzheimer ‘s disease with the same position as the late-onset Alzheimer ‘s disease and get down to change eligibility standards for these benefits.
3. That the province authorities bureaus ( Medicare, Medicaid, and Social Security Disability Insurance ) must be after for extra support beginnings to enable full fiscal support to all individuals diagnosed with Alzheimer ‘s disease, whether early-onset or late-onset
4. That the province authorities bureaus ( Medicare, Medicaid, and Social Security Disability Insurance ) should discourse the impact of Alzheimer ‘s diseases on the overall health care system
5. That societal support organisations provide resources and information based on the demands of the households of both early-onset and late-onset patients
6. That societal support organisations provide reding to early-onset households as a agency of get bying to this job
IV. Advocacy Efforts for Health Care Reform
Attempt to Fight Against Health Care Reform Resistance:
Wrote down my ain outlooks and statements against both the Republicans and the Dominicans who will certainly be opposing to my proposed amendments on wellness attention.
Wrote down the grounds why I am forcing and contending for a wellness attention reform for people enduring from the Alzheimer ‘s disease.
Strengths and Failings of the Target Individual/Group at Whom Action is Directed
This policy proposal on the “ Impact of Social Policy on Patients with Alzheimer ‘s Diseases and their Families ” is a research survey designed to depict in item the different societal policies on the eligibility and finding of benefits for patients enduring from Alzheimer ‘s disease.
This paper talks about how these different societal policies implemented by the federal authorities bureaus ( Medicare, Medicaid, and Social Security Disability Insurance ) affect the benefits and utility of the available authorities wellness support system to these patients enduring from Alzheimer ‘s disease both at the early-onset ( below 65 old ages old ) and at the later-onset ( from 65 old ages old and above ) .
The cardinal mark individual/group of people to whom the policy is directed is none other than the victims of the Alzheimer ‘s disease who are true citizens of the state, possessing equal rights and benefits which must be provided by the authorities.
Unfortunately, the sad world is that while more and more aged and younger citizens of the state are enduring from Alzheimer ‘s disease, less and less of them are able to avail of the benefits provided by the authorities. The authorities is really confident that these patients ‘ demands are clearly covered up by the authorities owned healthcare bureaus but the truth is that most of them are non even eligible plenty to avail of these “ free ” authorities services.
One of the failings of this mark group of persons is the fiscal duties they are faced to shoulder on their ain given the fact that the Alzheimer ‘s disease is the 3rd most expensive disease in the state, after bosom disease and malignant neoplastic disease.
Based on the recent informations gathered from the research survey, the mean life-time cost per Alzheimer ‘s disease patient is $ 174,000 with one-year estimations runing from $ 80 to 100 billion dollars. Given the fact that most of the patients enduring from Alzheimer ‘s disease come from low to medium-class households, it would be impossible for them to financially prolong the interventions their loved 1s have to travel through. The fiscal exposure of these households is hence is considered to be one of the major failings non merely of the AD patients themselves but besides their ain households.
Second, the authorities has to be cognizant that this peculiar mark group of persons, dwelling of AD patients and their ain households, carry with them a heavy load of taking attention of the demands of their patients since non all the demands of the patient are being covered by the authorities such as the demand for long-run attention intervention.
Slowly, more and more households are going used to the thought of being “ household health professionals ” , doing certain that their ain loved 1s who are AD patients continue to accomplish a stable community brooding position within the household bounds. These household health professionals so construct solid societal support webs for these patients while continuously supplying for the patient ‘s short-run and long-run demands. Oftentimes, these household health professionals besides serve as the tract to accessing available societal services provided by the authorities for AD patients.
Unfortunately, these households who served as the primary beginnings of attention giving for these patients found themselves in a vulnerable place of taking up to 50 % of the costs for attention of their loved 1s with Alzheimer ‘s disease. Aside from this, the degree of dependence of the AD patient further increases the cost of attention shouldered by these households to up to 25 % .
While guaranting that all the attention and the demands of these AD patients remain to be the top precedence of their ain households and loved 1s, the sad fact is that caring for these patients easy becomes a great load because of the deficiency of support and fiscal aid. Furthermore, as the household health professionals use up their economic and personal resources, the opportunities of the patient stoping up institutionalized in nursing attention scenes additions.
The emphasis and force per unit area that these household health professionals experience in back uping the demands of these AD patients are already excessively much to be added with more fiscal costs and load. Ideally the fiscal aid must be provided by the authorities which serves to be one the key rights of the people. The household health professionals are non inquiring for any other support from the authorities but fiscal aid since that is something that they truly could non supply to their ain loved 1s as they besides have other basic demands to be satisfied.
The strength therefore of this mark group of persons is their ain rights as citizens of the state to avail of the authorities wellness services provided by certain state-governed health care bureaus such as Medicare, Medicaid and Social Security Disability Insurance.
On the footing on the set eligibility standards, these state-run authorities bureaus accept people from all set classs such as: ( a ) elderly ; ( B ) people with mental deceleration or other developmental disablements ; ( vitamin E ) people with human immunodeficiency syndrome ; and eventually deceleration or other developmental disablements ; ( vitamin E ) people with human immunodeficiency syndrome ; and eventually ( degree Fahrenheit ) kids with chronic unwellnesss and particular wellness attention demands.
Provided that the patient is given eligibility to help of the services provided by the authorities, such as in the instance of AD patients, so the household health professionals and the patients themselves would non hold to endure from the fiscal load that they presently experience.
Another chief strength that this mark group of persons possesses is the broad scope of benefits provided by the authorities such as the drug coverage, healthcare tests and the long-run attention available for the AD patients. The lone job nevertheless is that the chief standards for the eligibility of an AD patient who will be given full fiscal support for his long-run attention has non been set clearly yet. Besides the degree of benefits, type, sum and continuance based on the eligibility standard of the AD patient has besides non been identified yet.
Strengths and Failings of the Interest Group ( s )
It was estimated that in the twelvemonth 2050, there will be around 16 million people who will be enduring from Alzheimer ‘s disease. By that clip, it was besides estimated that the important function that the different federal authorities bureaus, peculiarly Medicare, Medicaid and Social Security Disability Insurance dramas will besides be more in demand by that clip, than it is today. Given this prognosis, there are many policy betterments that need to be undertaken by these three authorities bureaus in order to run into the turning demands of the citizens when it comes to availing their rights to be treated.
Most particularly today, when the fiscal costs of handling patients with Alzheimer ‘s disease are turning at a high rate, there is a demand to turn to the issue by alining the available authorities services with the existent demands of the people, peculiarly the households of the AD patients who carry most of the fiscal and emotional load in handling their loved 1s ‘ Alzheimer ‘s disease.
The chief involvement groups in this societal policy are the federal authorities bureaus viz. Medicare, Medicaid and Social Security Disability Insurance. One major failing that is common to all three is the fact that eligibility standards for AD patients who may necessitate long-run attention have non been set. Furthermore, the benefits, type, sum and continuance of the attention for these AD patients have non been identified yet. Give this quandary, the long-run attention benefit of these patients has non been implemented yet due to the deficiency of the standards set by these authorities bureaus.
Medicare, a federal wellness insurance plan run by a federal bureau that is portion of the U.S. Department of Health and Human Services, has a major failing when it comes to turn toing the demands of the patients enduring from Alzheimer ‘s disease. Basically, there are two types of AD patients: one is the early-onset AD patient while the other one is the late-onset AD patient. Early-onset AD patient refers to patients who suffered from Alzheimer ‘s disease but are under 65 old ages old while a late-onset AD patient refers to patients who acquired Alzheimer ‘s disease from 65 old ages old and above.
The job with Medicare is that its set policies are focused excessively much on supplying full fiscal coverage for patients enduring from a peculiar disease and are 65 old ages old and above. What the Medicare deficiencies are policies which recognize the demands of patients enduring from a peculiar disease and are below 65 old ages old. It was stated in Medicare Part A that full fiscal coverage including critical entree infirmaries ( little installations that give limited outpatient and inmate services to people in rural countries ) , skilled nursing installations ( non tutelary or long-run attention ) , hospice attention and place wellness attention, without holding to pay a monthly payment, such as a premium.
Given this set policy, the opportunities of early-onset AD patients ( AD patients below 65 old ages old ) being provided with free authorities wellness service benefits are excessively little. The lone opportunity for them to avail of this service is by buying them. However, the policy besides stated that the AD patient could merely be given the opportunity to purchase these services if a. ) the patient or the patient ‘s partner did non work or pay appropriate Medicare revenue enhancements while they were employed and b. ) the patient is age 65 and older.
One will clearly detect that the Medicare policies are chiefly set on the eligibility standard of age i.e. , 65 old ages old and above which clearly discriminates any AD patient who may be enduring from the same type of disease but is merely 64 old ages old and below. That specific policy failing could hold the potency of ensuing into truly negative effects ( e.g. , decease ) for AD patients who could non afford the expensive AD interventions available merely because they did non make a specific age which makes them eligible of availing the services.
Another failing of Medicare is that it does non to the full cover the major demands of the patients even those who have already qualified to avail of their services. Some known medical demands non covered by Medicare include the undermentioned: wellness attention while going outside of the United States with limited exclusions, hearing AIDSs and hearing tests, and long-run attention such as nursing places. Furthermore, Medicare does non cover drugs and medical specialties proviso for the patients. They have an option wherein drugs and medical specialties will be covered but a certain premium fee plus other standards must foremost hold to be met by the patient in order to help of it.
Medicaid, a state-run federally established plan which specially caters to medical to low-income people, is likewise weak when it comes to puting the proper eligibility standards for patient donees of their services. Like Medicare, Medicaid defines eligibility on the footing of three classs: flatly needed, medically needed, or particular groups.
The lone strength of Medicaid is that it does non cover certain people such as those belonging to the “ medically needed class ” or those people who already have excessively much money. While all citizens possess equal rights of availing certain services the authorities offers, in the instance of supplying wellness attention, the precedence of the authorities should be on the bigger portion of the population who need fiscal support and aid when it comes to purchasing expensive interventions for their loved 1s enduring from a disease.
The Social Security Disability on the other manus caters specifically to people who are unable to work due to a medical unwellness which is expected to last a lower limit of a twelvemonth or consequence in decease. In simple footings, the Social Security Disability is concerned on supplying assistance to patients who have worse to extreme conditions.
For a patient to help of the Social Security Disability benefits, two earning demands must be met: one is based on the receiver ‘s age at the clip they became handicapped and the 2nd net incomes trial is on the cogent evidence that the receiver has worked for a compulsory period to be eligible to have Social Security.
Similar to the instance of Medicare, the failing of the eligibility standard of the Social Security Disability is the age standard which must foremost be met in order to continue to the 2nd net incomes demand. Again, this eligibility policy is really confining and know aparting to patients who may hold already possessed Alzheimer ‘s disease under the age of 65 old ages old.
However, the lone strength of the Social Security Disability is the fact that one ‘s ain attention physician will be the one to measure and allow the benefit to a specific patient which will more likely be just compared to the measuring organic structures of Medicare and Medicaid who may non be cognizant of the true status of the patients.
Learnings from this Experience
The policy procedure has so proven to be an effectual manner of measuring whether the impact of the assorted societal policies of the authorities owned bureaus, specifically for patients enduring from Alzheimer ‘s disease, has generated some positive consequences or effects on the lives of these patients every bit good as their households.
Through the policy procedure, both the mark groups of persons to whom the action is directed to and the involvement groups, become cognizant of the positive and negative effects of such policies set by the authorities every bit good as whether these policies address or limit their rights as citizens.
In the instance of Alzheimer ‘s disease patients and their households who extremely need fiscal support and aid from the authorities, certain policies presently being implemented by certain authorities owned bureaus appear to be excessively confining and even know aparting. Some policies have besides proven to be unjust for some patients who greatly need these authorities services and benefits but have failed because of the policies set by the authorities on eligibility.
Clearly, there is a demand to pass and re-assess the different policies set by the three authorities bureaus identified in the survey: Medicare, Medicaid and Social Security Disability when it comes to turn toing the demands of the people. Sometimes, the inclination is for these state-run bureaus to implement excessively many policies which do non give justness to the bulk of the citizens. When this happens, it defeats the intent of holding such policies in the first topographic point as these cause more injury and negative effects than good or positive effects.
The peculiar policy on age for case which was a common failing in the policies set by all three abovementioned authorities bureaus, discriminates early-onset AD patients and focuses excessively much on late-onset AD patients. All three set policies ordering that lone patients enduring from a peculiar disease and are 65 old ages old and above may avail of the full fiscal support and benefits from the authorities.
This is contrary to the fact that today, more and more AD patients below 65 old ages old needing fiscal support are non being provided with aid by the authorities. The sad world is that because of the individual policy on age which discriminates AD patients who have non yet reached the age of 65 old ages old and do non hold adequate money to help of the interventions they need in order to last, more and more AD patients will go on to decease non having any aid from the authorities. My cardinal larning therefore is that policies should be flexible plenty to run into and turn to the true demands and conditions of the people. The authorities should non let policies to impede the people from exerting their rights and policies must non besides limit the capacity and capableness of the authorities to supply assistance to its citizens.